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Patient reported outcomes are collected by the UCHCC in collaboration with the CFAR Network of Integrated Clinical Systems (CNICS). PROs are completed by patients at 4- to 6-month intervals.

Data elements include:

  • HIV quality of life, EUROQOL
  • HIV symptom index
  • Physical activity
  • FRAM body morphology
  • PHQ9 depression
  • Alcohol use, audit
  • Substance use, ASSIST
  • Sexual risk behavior
  • Tobacco use
  • ART adherence
  • Family history of clinical conditions