Hook-ups and check-ups: how social media is changing STD prevention programs

[This post was written by Catherine Grodensky, MPH.  Catherine is manager of the UNC Center for AIDS Research Social and Behavioral Sciences Research Core]

Researchers at UNC have been making news lately for their work using social media to enhance sexual health and disease prevention. Lisa Hightow-Weidman created and is studying the effectiveness of  a web-based platform to promote healthy sexual norms and testing, while Peter Leone is experimenting with Facebook for partner notification among those newly diagnosed with HIV.

Lisa Hightow-Weidman has launched a site called healthMpowerment to educate and promote sexual health among black gay and bisexual men

Public health experts are looking to the business world, which has already successfully harnessed the power of social media to influence purchasing behavior. The challenge of social media is that it’s radically different from the traditional health communication methods that we’ve become comfortable with.

As with all social media communications, health messages delivered through these platforms are not simple, one-way channels; rather, they involve–or have the potential to involve–response, dialogue, and adaptation/expansion. Furthermore, social media is at its most powerful when the messages are of personal interest to its users [Ed: this isn't limited to social media, but might be more true with social media], whose decision to circulate or engage with a message will greatly influence its reach.

Research such as that done by Hightow-Weidman and Leone is essential to begin the process of determining what social media can do (e.g., influence social norms, facilitate interpersonal contact and communication), what it might not be able do as well (e.g., track sexual behavior and STI diagnoses), and how it can reach tech-savvy populations (i.e. young people, who account for the majority of new HIV and STI diagnoses).  As with all other tools for influencing health behavior change, social media has its strengths and weaknesses. UNC is fortunate to have leaders in the field who can explore those factors and harness them for sexual health.

– Catherine

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Next generation photo sharing: diagnosing disease via mobile phone

Earlier this week we learned that Facebook purchased the photo-sharing app Instagram for $1 billion. Clearly there is a demand for online photo sharing — with friends, family, potential customers, and other audiences. But what if you could use that technology to save lives?

Josh Nesbit, CEO of Medic Mobile and a member of the board at Chapel Hill-based IntraHealth, thinks it could be coming soon. Yesterday he appeared on WUNC’s The State of Things to talk about his work and “switchpoints” in global health. One billion people across the world don’t have access to basic health care, but more than 90 percent of the population gets a mobile phone signal.  On the show, Nesbit mentioned a photo-sharing platform in development that may allow health workers in the field to get a tuberculosis diagnosis for a patient via their mobile phone. When you hear Nesbit talk about the remote places he’s been to, where one physician is tasked with caring for hundreds of thousands of patients, some of whom travel as many as 100 miles to be seen, you can imaging the power of such mobile technologies (Listen to the podcast of yesterday’s interview).

Nesbit will be one of more than 30 speakers at SwitchPoint, an unusual gathering of global thinkers and doers merging ideas, sharing breakthroughs, and finding solutions to save lives in the developing world. Hosted by IntraHealth, Switchpoint will take place on April 20 in Saxapahaw, NC at the Haw River Ballroom. SwitchPoint will feature leaders  and entrepreneurs who know how to get people across sectors thinking differently about opportunities to create, innovate, and collaborate to save lives and support health and well-being in developing countries.

Speakers work or have worked for industry leaders including GOOD, Google, Red Hat, USAID, Medic Mobile, Development Seed, MapBox, New Kind, iHub, Ashoka, the Buckminster Fuller Challenge, Grameen Intel Social Business, the UN Foundation, the World Bank and Cisco.

To learn more or to register for the event, go to switchpointideas.com.

- Lisa

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Margolis talks HIV cure

Earlier this month, we reported on some exciting new research on the HIV cure front. UNC’s Dr. David Margolis and his team used a cancer drug called vorinostat to flush latent HIV infection from hiding.

The study involved six HIV-positive men who were stable on an antiretroviral therapy, and had no detectable virus, but had a “reservoir” of virus hiding in resting CD4+ T cells, the immune system cells that the virus uses to replicate. Within just hours of receiving vorinostat, all six patients had a significant increase in HIV RNA in these cells, meaning that the virus had been forced out of its hiding place and was replicating.

In January, Dr. Margolis spoke at Sigma Xi, the scientific research society, in Research Triangle Park.  In the accompanying podcast, he talks “curative therapy” (as opposed to cure), viruses and the immune response, and the “Berlin patient.”  Click here to listen.

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Expect nothing, be grateful for everything – an emergency medicine resident in Nicaragua

[This is the first in a series of posts by David Carbonell, MD, a third-year resident in emergency medicine at UNC Hospitals.  In November 2011, Dr. Carbonell spent a month in León, Nicaragua on rotation with Project Health de León.  Project Health de León is a non-profit organization run by a group of surgeons at WakeMed that organizes surgical support services to León. They provide expertise through staffing in specialized procedures and educate Nicaraguan surgeons in techniques that aren't typically practiced in their health care system.]

Our group ended up being larger than I thought. There is Dr. Sullivan, who organizes the whole trip for Project Health de León; he is amazing. He might have a few gray hairs, but he is spry and sharp as a tack; he is a true renaissance man. He has been to Nicaragua perhaps 25 times now, so he knows tons of local culture, geography, folklore, and history (which I love). His daughter Lori came as well; she is perhaps even more well versed than he in Nicaraguan lore. Jeff Abrams, another of the surgeons at WakeMed, came to help out as well. Grant Buttram, a neurosurgeon, is down here to do a few cases for the first 3 days, and he brought his wife Mitchie, who is a pilot. Finally, there is Megan, a 2nd year surgical resident who came with the group last April, so she is quite helpful about telling me what to expect.

carbonell and volcanoes

We stopped to enjoy some excellent views of volcanoes on the way in: Momotombo (on the left) and Momotombito (on the right)

We landed in Managua and were picked up by some of the surgical residents/attendings who work at the hospital in León.  We started the drive from the airport in Managua to León, which is about 60 miles. It took us over 2 hours! The traffic in Managua is horrific, and the roads don’t have potholes; they have craters.

We got to our little hotel, which is very convenient to the hospital we will be working in, which is called HEODRA (Hospital Escuela Oscar Danillo Rosales Arguello).  A teaching hospital, HEODRA has approximately 200 beds and residency programs in medicine, surgery, OB-GYN, pediatrics, anesthesia, and orthopedics.

Only about half of the lights in the hospital work, so most of the hallways are dark, claustrophobic, and inspire despair. The paint is chipping off the walls and collecting in the corners. There is a white powder all over the floor, which I am told is cockroach poison, which I can only hope is safe for humans to be around, because it is in close proximity to pretty much everything.

The fixtures look like they were installed decades ago. There were no dispensers of hand sanitizer on the walls; in fact, I couldn’t find a single sink to wash my hands in.

examining films with neurosurgeon

Patients at HEODRA must keep track of their own films (CT scans, x-rays, etc.)

Apparently, the lights in the operating room don’t really work either, but they do have a light box. Patients bring their own MRI and CT scan films with them wherever they go. It doesn’t stop there: if you want pain medication for during or after your procedure, you have to bring that, too, because the hospital doesn’t stock anything more potent than ibuprofen.

It was only my first day, and already I had the opportunity to translate some. This was incredibly fun and interesting for me (and sometimes scary), because I’m not used to translating for other docs, and I’m certainly not used to translating neurosurgery speak, but I did my best. The local docs presented various patients with symptoms and complaints, and I translated to Dr. Buttram, who had me ask them several questions.

Helping translate made me feel especially useful, because the patients really seemed like they needed help. They were also so grateful for being seen and listened to, even when our surgeons said, “No, this is too risky to do here.”

One of my cohort said, “In America, patients expect everything and are grateful for nothing. In Nicaragua, patients expect nothing and are grateful for anything.” I think this couldn’t be more true.

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“I am a collage”: poetry, politics, power in Malawi documentary project

In 2009, photographer Kathryn Stein raised money to do a documentary project in Malawi about child-headed households impacted by HIV/AIDS. While in Malawi, she collaborated with the Pendulum Project/Face-to-Face AIDS, local grassroots organizations, and UNC Project-Malawi. The video below came out of that process. In it, CJ Suitt, a North Carolina poet and educator, performs his poem, “Malawi, I hope you hear me,” based on these stories and photos.

Kathryn is a research assistant at UNC, and this fall she will begin a master’s program in Health Behavior and Health Education at the Gillings School of Global Public Health.

Credits:

  • CJ Suitt – poetry
  • Kathryn Stein – photography, audio, video editing
  • Mikel Barton – production support
  • Steve Milligan – camera
  • Stephen Garrett – camera

For more information, please contact stein.kathryn@gmail.com or csuitt05@gmail.com.

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Hark the sound: cheers for Myron Cohen at Tar Heels basketball game

So, what do you give the Carolina faculty member who has already been given the Hope is a Vaccine award, been featured in the cover story of The Economist, received a standing ovation at the leading scientific conference on HIV/AIDS, and led a study that was named by the journal Science as the 2011 scientific “Breakthrough of the Year?”

A few minutes on the court in the Dean Dome, of course!

No, Dr. Cohen was not playing for the Tar Heels, but he was honored during their game against the University of Virginia at the Dean Smith Center on February 11, 2012.

Watch the video.

YouTube Preview Image

 

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The thin, red line of motherhood in Malawi

A Malawian woman and her baby at Bwaila Hospital in Lilongwe. This is her third child, which she delivered at the age of 19.

Two women stood across this red line outside the operating room at Bwaila hospital Freedom from Fistula Foundation clinic in Lilongwe, Malawi last week.

Each was asked if we could take her photo to share with people from different countries in order for others to understand her condition. Both readily agreed.

One woman is pictured here with her 13-month baby. She delivered at home for the third time at age 19. With the delivery, she experienced a tear of the vagina in to the rectum that remained unrepaired because there was no skilled birth attendant present. She was left with incontinence of stool for the last year and presented for care at the fistula center a couple weeks ago.

The other patient, pictured alone here, also delivered at home, but ten years ago and experienced obstructed labor, delivery of a stillborn baby and was left with a fistula and unrelenting urinary incontinence since the delivery. Her injuries were so severe that she will never be capable of having a child. Her reproductive tract was irreparably scarred. . .[Read the rest of this post on the UNC Department of Obstetrics and Gynecology blog]

[This post was written by Dr. Jeff Wilkinson, a UNC Ob/Gyn who lives and works in Lilongwe, Malawi]

Posted in Africa, Clinical care, From the Field, Malawi | Tagged , , , | 8 Comments

A Carolina alumna honored for her contributions to women’s health around the world

When I first started working in infectious diseases at UNC, I was assistant to Charlie van der Horst. One of the earliest names I came in contact with was Denise Jamieson. At the time, van der Horst was in the thick of a five-year, CDC-funded study called the Breastfeeding, Antiretrovirals and Nutrition (BAN) study. Jamieson was the principal investigator at CDC for study, which was conducted in Malawi and aimed to prevent mother-to-child transmission of HIV.

No one ever mentioned that she is a Carolina grad.

Denis Jamieson was awarded a 2011 Distinguished Alumni Award during UNC's University Day celeberation

Earlier today, Dr. Jamieson was awarded one of five Distinguished Alumni Awards during our University Day celebration. University Day (Oct. 12) commemorates the official founding of UNC-Chapel Hill.

Jamieson is a captain in the U.S. Public Health Service and chief of the Women’s Health and Fertility Branch in the Division of Reproductive Health at the CDC. She also is a clinical professor of gynecology and obstetrics at Emory University. In addition to her Carolina MPH (1991), she holds an MD from Duke (1992). She is a national leader in the promotion of women’s reproductive health, and has received the Department of Health and Human Services Secretary’s Award for Distinguished Service, among other honors.

Jamieson is a champion of women’s health and has made contributions to our understanding of ectopic pregnancy, preeclampsia, postpartum depression, emerging infectious diseases, contraception and hysterectomy.

IGHID’s associate director, Peggy Bentley, who also worked on the BAN study, said, “Dr. Jamieson is a scientist whose work has made a major impact on improving pregnancy-related morbidity and mortality worldwide.”

“Dr. Jamieson received this award because she exemplifies what we have come to expect of a Carolina graduate: a profound and deep commitment to making the world a better place,” Charlie van der Horst told me. She has done this “through compassionate care for the less fortunate; through training the next generation of scholars to continue her work; and through cutting edge clinical research to discover new ways to help humanity.”

Congratulations, Dr. Jamieson!

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Working in Bangladesh, a student begins to see the whole picture

The health programs director leafed through the monitoring tool, a checklist that details the key components of family planning counseling. Providers themselves will use the tool as a point of reference during patient treatment. Periodically, other field co-workers will use the checklist to check the quality of care given to patients.

“I have four hours during a clinic. If I have 50 patients, I only have four to five minutes to give to each patient,” he said. “And I usually have more than 50 patients.”

He stopped there. The tacit question–How can I expect my healthcare providers to do all this with each patient?–hung in the air. Anxiety about the trade-off between quality and quantity exists on a whole different level here in Bangladesh.

Burcu and staff of the Emirates Friendship Hospital

This summer, I am working with an NGO called Friendship, which provides health care – through a hospital boat, satellite clinics, and community health workers – to impoverished island communities in the riverine north of Bangladesh. My internship entails helping to start a monitoring system for our health services to ensure the same standard of care across our entire coverage area. Monitoring has the potential to ensure that patients don’t fall through the cracks, that we do a comprehensive job with each, and we celebrate good practice. When patients do fall through the cracks, the tools act as a built-in feedback system to identify room for improvement. But this all requires a bit more time and focus, plus a system that will value, and not fear, feedback.

Two months later, when the same director was advocating for the use of such tools to his field staff, someone asked, “But sir, if we provide all this quality, won’t we lose our patients?”

At UNC’s public health school, many of my lectures and conversations revolve around the three pillars of cost, quality and efficiency. These words have shaped my episteme of public health. They play a pivotal part in how I think successful interventions and programs should be designed and developed.

Little could have prepared me for the task of interning in one of the most resource-poor settings in the world and the complexity behind the reality. My practicum has instigated a much-needed, intentional evaluation and deconstruction of these words and what they mean for different people. Whereas in the United States, our debates revolve around “getting our money’s worth,” “ensuring the health care continuum,” and “effective use;” in Bangladesh, NGOs face the monstrous task of transforming an entire system where millions can’t even envisage a life with the most basic rights and needs, let alone equitable, dignified and quality health care.

The streets of Gaibandha, Bangladesh, near the Friendship Field Office, are teeming with people

Obviously, distinctions abound between these two healthcare systems. Most of these come from both countries falling on opposing sides of the Great Epi Divide. Stunting, for instance, is still common among Bangladeshi children, and the probability of dying between 15 and 60 years of age is six and a half times higher in Bangladesh versus the States. And though Bangladesh faces the unique pressure of its dense population, the United States uses about four times more of its GDP on health, percentage-wise.

However, my experience has involved finding far more commonalities than differences. Both countries share the same familial problems: health care access is limited due to financial constraints, and governmental bureaucracy or special interests inhibit practical application of research. Uneven progress in treatment and care is distressingly common. Both suffer from a limited health care workforce and sub-par social policies that economically and politically damage governmental bodies. These are all connected to global forces that enmesh the impoverished and affect health in broadly similar ways. The most recognizable symptom: sick people left untreated.

Perhaps the most significant and encouraging similarity that I’ve encountered is that both systems share an immense potential for transformation. Why? Organizations might not be staying true to the buzzwords they claim, but on an individual basis, a values-based approach is widely followed. My Bengali friends want to reflect, they want to improve, and they want to build consensus around change. This change in organizations, hospitals, and in communities might not be linear or fast, but it has the power to repaint the picture of health in Bangladesh.

Debates among health NGOs are starting to leave room for the ideals of cost, quality and efficiency to be solidly planted in the larger themes of social justice and equity. Health for all, (not just for the rich, or for the most patients), is no longer a slogan, but a sought reality that transcends borders.

“But sir, if we provide all this quality, won’t we lose our patients?” The director admitted that yes, it would take extra time and effort to ensure quality. “But in the end, the answer is no. They’ll get better treatment and be healthier. Besides, all of our patients deserve the best we can give them.”

- Burcu


[Burcu Bozkurt is a senior majoring in health policy and management at the UNC Gillings School of Global Public Health. With support from the Carolina Undergraduate Health Fellowship and the Mahatma Gandhi Fellowship, she worked this summer in Bangladesh, at the NGO Friendship.  To read more about her experiences, visit her blog, burcuatfriendship.wordpress.com]

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Conflict, famine, tragedy

I spent yesterday afternoon over in the public health school filming a series of interviews on the humanitarian emergency happening right now in the Horn of Africa, including Somalia, Ethiopia, Djibouti, and Kenya.

screen clip of twitter search on famine crisis

There are a lot of links to good information about the crisis, including how you can help, on Twitter

Our interview subjects looked at the crisis from different, but complementary angles: Peggy Bentley, IGHID’s associate director, talked about hunger, malnutrition, disease, and other health concerns (her recent column on the crisis can be found here); Ben Meier in public policy talked about the crisis in terms of international policy and the individual right to food, water, shelter and security; and Bereket Selassie, professor of law and African studies, talked about political instability in the region, how neighboring countries are responding, and how political turmoil is affecting relief efforts.

Prof. Bentley mentioned a quote she came across, which encapsulates the evolution of this crisis. It’s from a reporter for the BBC, George Alagiah: “Conflict has turned hunger into famine and disaster into tragedy. I know it, the aid workers know it and so, too, do the refugees.”

We will post a link to the video once it’s finished.

I have just set up a Twitter search for the tags #Somalia, #famine, and #HornofAfrica, so I can follow what’s happening on the ground and monitor how the U.S. and other nations and international bodies are responding to the situation. Some of it is really hard to take, but ignoring it won’t make it go away.

What are you doing to stay informed about this global humanitarian crisis?

-Lisa

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